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Stillbirth PowerPoint Presentation

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Description : Stillbirth is common, with 1 in 200 babies born dead. This compares with one sudden infant death per 10 000 live births. There were 4037 stillbirths in the UK and Crown Dependencies in 2017 at a rate of 5.2 per 1000 total births. The overall adjusted stillbirth rate was 3.9 per 1000.In addition to any physical effects; stillbirth often has profound emotional, psychiatric and social effects on parents, their relatives and friends. A clearly documented care plan and integrated multidisciplinary approach can help to support the whole family at this difficult time.

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Published on : Dec 23, 2023 | Views : 439 | Downloads : 0

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Supervisor: Dr. Mogaddam Presented by: Dargahi Empty arms
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Stillbirth is common, with 1 in 200 babies born dead. This compares with one sudden infant death per 10 000 live births. There were 4037 stillbirths in the UK and Crown Dependencies in 2017 at a rate of 5.2 per 1000 total births. The overall adjusted stillbirth rate was 3.9 per 1000.In addition to any physical effects; stillbirth often has profound emotional, psychiatric and social effects on parents, their relatives and friends. A clearly documented care plan and integrated multidisciplinary approach can help to support the whole family at this difficult time. Introduction
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This situation must be handled with the utmost compassion. In cases of intra‐uterine death parents may need time to come to terms with the situation. Acknowledge the parents feelings and permit them to be alone if they so wish. At other times allow them to express their feelings and concerns Principles and standards of care
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Because a sizable number of parents will be at risk for psychological difficulties, counseling over the next year is needed to provide support, facilitate grieving, discuss autopsy results, and make referral for psychotherapy when appropriate. Such a series of three to four meetings (or more if necessary) has long been recommended by caregivers and researchers and has been associated with fewer cases of unresolved grief and less prolonged grief. More recent studies indicate the value of interventions after perinatal loss in ameliorating grief when using measures of patient satisfaction, comparison with a live-birth group, and comparison with a nonintervention bereavement control. Guidelines for Counseling
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While meta-analysis of the broad range of bereavements indicate that grief counseling is not always warranted, and indeed, in some instances may be counterproductive, this does not apply to traumatic, complicated losses which are most likely to benefit from such interventions. The unexpected and usually multifaceted nature of pregnancy loss is likely to make some amount of counseling useful if not necessary. Such counseling is best accomplished in office visits, highlighting the importance of face-to-face meetings rather than brief phone calls. Such a series of meetings tells patients that we mean what we say: grief is a process that is not accomplished all at once but takes time and work. Guidelines for Counseling
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Charging a fee for an office visit is also warranted, communicating the importance and value of such meetings. Such counseling is most effectively provided by the physician who has established a trusting relationship with the woman prior to the loss, reinforcing the principle of continuity of care. Ideally, both partners should participate, although an unwilling father should not preclude individual meetings with the mother. It is important that this counseling be presented to the family as a routine and basic part of medical care; they should not be made to feel that they are being singled out for special psychological treatment because they are “messed up.” Guidelines for Counseling
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Medical caregivers without mental health training must, of course, be careful not to attempt psychotherapy required by earlier mental health problems or more severe psychological disturbance. Medical caregivers need to become familiar with the basic elements of grief counseling and applying counseling in medical settings. The importance of providing empathy, individualizing care, and empowering parents discussed in guiding hospital practice is just as critical in conducting counseling. With the availability of more time and greater emotional distance from the crisis of the loss, it is now possible to explore in greater depth what this loss means to the couple. Guidelines for Counseling
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Although a cardinal rule of grief counseling is understanding the nature of the relationship of the bereaved with the deceased, it is especially striking how often the feelings of the pregnancy—the hopes, fears, and often unspoken misgivings—get overlooked. It can be explained to the bereaved couple that you want to understand what this pregnancy and loss has meant to them, including how experiences in their past, growing up, marriage, and so forth, may have influenced their feelings about this pregnancy. Guidelines for Counseling
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Losing a pregnancy or a baby at any stage is an emotionally difficult experience. We have resources to help you through this time. Following a stillbirth, you may have a range of emotions - numbness, sadness, anger, guilt and regret. Taking the time to understand your feelings may help you through the grieving process. Our midwifery counselors offer spiritual care for women and their families affected by illness or injury. Stillbirth & midwifery counselors
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During your time at Women's, you may experience times of joy and celebration, or times of disappointment, distress and grief. During difficult experiences, intense emotions and painful questions may arise: "Why my child?" "How do I cope?" "Does anyone care?" "Where is God when it hurts?" "What does this mean?" "How can I keep going?" Spiritual Care
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We provide spiritual care to help you explore these questions and others. Our & midwifery counselors are able to: offer comfort and compassion listen to your story support you in your journey help with ethical dilemmas you may be facing offer spiritual support and prayer if you wish help you plan special services Spiritual Care
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It is natural to feel bombarded by mixed emotions when you receive the news that your infant has not survived. Understand that there is no right or wrong way to feel. There are no “shoulds.” You may experience feelings of extreme sadness and loss. You may feel cheated or betrayed, or that something is wrong with you. Perhaps you are struggling to make meaning of your loss. This is your time to come to grips with the unexpected. The pain isn’t going to go away immediately. The memory of this experience will linger, but try to have courage and faith that over time heartache associated with it will lessen somewhat. The Pain of Perinatal Loss
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At this stage of your life, it is important that you allow yourself to mourn. Take as much time as you need. Let it happen in your own way and on your own timeline.7 One of the most helpful things you can have at this time is a strong network of support. Try to reach out to friends and family. Talk to them about your feelings. Do not be afraid to ask them for help if you need it.4 Keep in mind that others may not understand the magnitude of this loss. Consider explaining the significance of the loss to those around you. Communicating with them can help them sympathize and become better able to support you in the way that you need to be supported. Taking Time to Grieve
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In hard times like these, it can be difficult to cope alone. You may find that the experience brings you closer to your spouse or partner. You may also find that the pain drives each of you to seek alone time and that you feel yourselves growing distant and apart. One challenge of perinatal loss is the realization that you and your partner are grieving in different ways.1 Do not let this difference in mourning styles discourage you from attempting to communicate with one another. Remember, your partner is hurting, too. Take turns talking to each other about how you are feeling. Support each other. Strengthening Your Relationship with Your Partner
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Birth, marriage, and other cultural rites of passage are important life transitions. Death is no exception. Experts agree that active participation in the grieving process is the best way to cope with the loss of a loved one. Rituals are effective tools you can use to make meaning of your loss. There are many different kinds of rituals. Here are some suggestions for you to consider. the Importance of Rituals
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1. Memory boxes 2. Name your baby 3. Come into contact with a higher power 4. Religious rites and practices 5. Cultural and family traditions 6. See, hold, and touch your infant 7. Take photographs 8. Consider a funeral 9. Collect mementos 10. Keep a journal or a blog
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While you are bereaving, it is important to take care of yourself physically. It may be difficult to think about right now, but good lifestyle choices will help your body to heal, and sometimes the best way to nourish a hurting soul is to take care of the physical needs first. Try to eat nutritious foods and stay active. Taking Care of Your Body
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If you have been through perinatal loss before, subsequent pregnancies may be worrisome or stressful. Take comfort; the odds are in your favor. As many as 85% of women who have experienced perinatal loss go on to have successful pregnancies. This means that you have an excellent chance of conceiving again in the future. Subsequent Pregnancies
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15 Simple Ways To Help Grieving Families Following Stillbirth “Empty Cradle, Broken Heart: Surviving the Death of Your Baby”
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1- The most important thing you can do to help someone after they experience this kind of loss is simply to show up. Be there. Call, email, text, facebook message – reach out to them. And then, reach out again, and again, and again. Don’t expect a response, just let them know you are thinking of them.
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2. This sounds cliche but send food. If you are local, organize a meal train. Bring frozen foods and stock their freezer (the parents will likely feel unable to cook or go about normal household activities long after the meal train ends). If you are not local, you can still send frozen foods from many online sources Rose said – we received so many frozen meals from across the country that we had to purchase an extra mini freezer to store them all. You can also send food delivery gift cards, gift cards to favorite restaurants, or ask if there is a night you can call in a delivery order for the family. While being local is the only option for physically making food for the family, there are many ways you can help feed them from across the country or even the world.
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3. Send mementos of their lost baby. If they have shared pictures of their baby with you, create gifts incorporating those images. Jewelry is a lovely memento, and there are many online options for personalized jewelry, but anything the parents can wear and touch on an everyday basis to feel connected to their little one will be treasured. The parents will also need a special place to put the blanket their child was wrapped in and any clothes they wore in the hospital – a personalized wooden memory box is a lovely gift to store these precious items. Be creative with mementos; a friend sent a personalized blanket from an organization that supports foster care and adoption. I love the fact that she chose to help children in her support of us. I love that through our son; she found a way to improve the world.
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4. Ask about the baby. Ask what he was like and express interest in any pictures the parents may have. Grieving parents are just as intensely proud of their children as the parents of living children and want to share them. Sara: I love talking about Kegan. I love saying his name, and I love hearing other people say his name. I love reminiscing about how early I was able to feel his little kicks, and how he loved to do acrobatics at 3 o’clock every morning. Please Don’t Forget About My Child Grieving parents are still parents; they are still amazingly proud of their baby. It means so much to have the opportunity to share your pride in your child.
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4. Remember the grieving sibling. Our daughter was just under 2.5 when her brother died. The number of people who reached out to her by sending her puzzles, books, and stickers astounded me. These gifts serve a dual purpose – they help bring joy into the grieving sibling’s life, and they also help keep them happy and occupied during the times while their parents are struggling.
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Remember, even if the child is young, they have still lost a sibling. Young children may not have the language to express grief, but I have learned through watching my daughter that they grieve, and moreover, they find their parents’ grief confusing. If you have direct contact with the remaining living sibling, ask the parents how they would like you to address any questions the child may have. -We opted to tell our daughter that Mommy and Daddy were sad because they missed baby brother, that Mommy and Daddy love all their children very much and so we are sad when any of them are away from us. We emphasized to her many times that we love both of our children and went over this explanation with her babysitters.
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6. You can also offer to babysit. The parents will have doctor’s appointments, funeral home appointments, therapy appointments…they will be overwhelmed by the sheer number of times they need to find a babysitter. Offer to watch their living child while they try to make arrangements for their deceased one.
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7. This brings me to the next issue – arrangements for the deceased. The parents will have to decide if they want to perform an autopsy on their child. They will then have to decide if they want to bury or cremate their child, what they are going to do with their physical remains, and if they’re going to have a memorial service. Surviving My Baby’s Funeral: One Moment At A Time If you are very close to the family, ask if you can help with logistics. The parents may say no, they may want to do everything themselves. I did not want anyone doing anything for my son because I wanted to parent him every last second and through every final act that I could. However, I have known other parents who would have welcomed support in these logistics; it is simply a personal preference.
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8. Please remember the baby on anniversaries and holidays. Every month, the day my son died and the day he was born are excruciatingly painful. I have no idea how I will survive the one year anniversaries of his due date, death, and birth, or these anniversaries on subsequent years. when one of the people you love most in the world is missing, they become days of grief.
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Please be mindful of this; reach out to the parents on holidays, remember they may not be happy days for the family. We are asking friends and family to donate to chosen charities in our son’s name on his birthday and Christmas. If the family provides such an option, please do it! And then tell them you did, because not all charities will notify them of donations. Alternately, you can choose a charity the parents would support, make a donation in their child’s name, and then tell the parents. I love to hear the ways Kegan is making the world a better place; I love to hear how people remember him in their philanthropy. If you give holiday presents to the couple’s living child, it means so much to remember their deceased child as well (donations are the easiest way to do thi
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9. Please remember that the mother is postpartum. This is frequently overlooked for the simple reason that people forget you are postpartum when you don’t have a living baby. Her breasts will cruelly fill with milk; her body will ache at the places where childbirth tore her open, her hormones will be fluctuating and adjusting to the end of pregnancy. Physically care for her.
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10. Support the marriage. There is an increased incidence of marital strife and divorce following the death of a child. Knowing this, we have chosen to go to grief counseling as a couple to learn how to best support each other. Every couple will deal with losing their child differently. We have turned to each other in our grief, but it is just as common for couples to shut each other out.
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You can help by offering to find a grief therapist who takes couples (and their insurance), helping them plan a date night, and merely building them up to each other. The couple needs each other’s love, help them to see it. Make Us Or Break Us
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11. Please don’t ask if they will ‘try again.’ This implies the baby was a replaceable, amorphous baby figure instead of what they were, an individual whom the parents fiercely loved. Similarly, don’t ask if/when they will give their living child a sibling, no matter how long it has been since their baby died. Their child has a sibling; they aren’t alive.
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12. Please also don’t ask how the baby died. -The question of ‘what happened?’ was deeply upsetting to me because it implied Kegan’s death was my fault, that I had done something wrong in carrying him. Frequently, the cause of late-term stillbirth is never identified, and by asking this question, you are further torturing the parents with a problem that already is a constant refrain in their minds.
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13. Similarly, don’t say that something must have been wrong with the baby or that all things happen for a reason. There was nothing ‘wrong’ with our son, his death was a statistical anomaly, but even if there had been, that does not mean he deserved to die, or that we deserved to have him taken from us. Religion is also best avoided unless the parents bring it up. If the parents are not in religious agreement with you, religious platitudes can come across as disrespectful and overbearing, and even if they are in theological understanding, hearing God planned for your baby to die is incredibly hurtful. Christian-ese and Grief: Why Those Platitudes Don’t Help The Mourning
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14. Please also don’t tell the parents how to grieve. This can take place in well-meaning statements such as ‘be strong,’ ‘move forward,’ or ‘you need to eat/pray/workout/etc. more.’ The only thing the parents need to do is survive from one day to the next. Grief is a profoundly personal road, and there is no correct way to go through it.
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